- Tomorrow morning-ish, they are likely to give Dad a tracheotomy. It's a bedside procedure that should take about 30 minutes. I find the idea of a trach pretty freaky, but a lot of people have said very positive things about it, including the doctor, Dawn, and other medical personnel-types. The benefit of a trach is that Dad won't have a ventilator tube down his throat, which is generally painful and annoying -- Dad is still coughing pretty strongly even in his comatose state, especially when they bump the ventilator stuff at all, so it does make sense that the tube is bothering him. Maybe he'll show some amazing progress after the trach! Wouldn't that be fantastic!!
- Dad's ICP numbers (indicating brain pressure) are stabilizing -- they are able to leave the drain closed for 2+ hours at a time now. So the doctor may be taking the drain out in the next few days. Then (I think?) they'll do a CT scan to see if Dad has developed hydrocephalus which will require a (permanent) shunt from his brain into his stomach.
- If Dad doesn't need a shunt, they'll place a PEG tube either this weekend or early next week. The reasoning for this operation is that the feeding tube is another source of irritation to the throat...and also another possible source of infection, which has got us all running scared right now.
- They might perform an ultrasound on his legs to see if he's developed any blood clots, which might explain his current fever. [Which, actually, would then make him & Mom a matched pair, haha.] If they find a clot they'll do some other complicated stuff to make sure the clot doesn't get into the heart or the lungs.
- The fever might also be being caused by the anti-convulsant drug that he's on right now (Delantin?). So if they can't find any other source of the fever then they'll switch him to a different anti-convulsant drug.
Okay, other updates...
Dad's hiccups seems to have disappeared! Yay! That's so awesome, you guys, you have no idea. Thank you thank you. He spent the entire day breathing on his own, without any ventilator assistance (which is what makes them think it would be okay to do a trach soon). He breathes at a fairly low rate of 8 breaths/minute now, but at the same time takes very deep breaths, which Mom says is actually normal for him. He is displaying a bit of apnea, which he was doing even before the aneurysm, and he doesn't do it too often, so that seems to be okay.
Dad's fever is up around 102 again. :( They've sent off culture samples but don't seem to have received anything definitive back from that. Since the brain swelling is behaving fairly nicely now, that shouldn't be the cause of the fever, so it's a little bit of a mystery. Please send prayers that they figure it out, and that whatever is the source of the fever doesn't cause my dad to lose any ground in his road to recovery.
Dad is responding less strongly to the pain stimuli. :( We really have no idea why that might be the case (though it does seem to differ depending on which doctor/nurse is giving the stimulus), but it's not really a good sign. We thought that maaaaaaaaybe the fever + hiccups were wearing him down?, but we're not too sure whether that's a plausible explanation or not. However, our hope is a little fragile right now so please don't pop our bubble until later. ;)
Other than that, he's holding pretty steady in his comatose state. We'll continue to hold onto our hope that Dad will begin to show stronger signs of recovering soon. The doctor has counseled us to be somewhat patient over the next 2 weeks...and the good Lord knows that patience is not our strong suit, so please please pray for strength for our family during the next few days and then weeks.
God bless you all.
--Kristy
10 comments:
Marian, Kristy, and Dawn,
Thank you for keeping us all posted on Ed's condition. You should know there is much concern and many, many prayers on your behalf from the people who work with Ed. He is greatly missed and we all hope for a full recovery.
I stopped by the hospital briefly Sunday evening after you had all gone home. I peeked in on Ed for just a moment and prayed for him.
God's peace, comfort, courage, and stamina be with all of you.
Oressa
The brain drain is called a ventriculostomy and the anti-seizure medicine is known as phenetoin or usually by it's brand name of Dilantin. Thanks for the updates. We'll keep the prayers coming. Make sure to get some rest and diversion, since it will wear you down, otherwise and that wouldn't be good for your dad. :) Who's your dad's neurosurgeon? All the best, Russell Daniel
Marion, Kristy, and Dawn,
We want you to know that you and Ed remain in our prayers. I bumped into Ed on the Massey Draw Trail before Thanksgiving and we had a great conversation leaning on our hiking poles. I think Ed had even more gear and electronics for a back yard hike than I did!!! We pray for your strength, and I'm adding patience,and for Ed's recovery.
I am sure that the circle of Love surrounding Ed is even greater than you can imagine.
Jeff Lori and Megan Kaes
Thank you so much for keeping us updated. We know it can't be easy & you're doing a wonderful job. We continue to pray for all of you. Our 15-month-old son, Brayden, keeps handing us the book that Marian & Ed gave him. It's his favorite book & I think it's his way of saying he's thinking about you guys too.
Hey Kristy,
I've been reading this blog diligently. I want you to know that I'm thinking of your dad. I hope he will show some significant progress over the next few days. Wish you and your family lots of strength and patience.
Esther
Thank you for the information. You are an amazing family. I pray for you all and am very thankful for kind hearts as Ed and Marian have. They were so kind to get a key board to use for choir and I love it so much. God speed recovery and lots of patience. Beth
I also read the blog diligently and want you to know I think of you all and wish you God's strength, peace and comfort. Sharyn M.
Ed is a lucky man to have 3 women who love him so much, and such a huge circle of friends and family who are lifting him up in prayer. Be assured that he's fighting with every ounce of his being to come back to you. Our prayer is that he wins.
There are a lot of prayers going out for your, dad, you and your family and the medical staff at the hospital. Thanks for the updates. With God's help, we are all hoping for a positive outcome. See you on Sunday for hugs and comfort. John Landefeld
Marian, Kristy and Dawn,
My prayers are with you and Ed. May God bless all of you during these tough days. Thank you for the updates. Let me know if there is anything I can do. Carla Romero
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